CANCER REGISTRY

CANCER REGISTRY

The Cancer Association of Namibia is proud to present the “2010-2014 Cancer Incidence Report” on reported cancer cases in the Republic of Namibia. In addition to this report, 2 other previously published reports are available online.

For more information of interim statistics (2015 onwards), please contact the Namibia National Cancer Registry at canreg@can.org,na

History of Registry

The Namibia National Cancer Registry was started in 1995, when Rössing Uranium mine, in co-operation with the Namibian Ministry of Health (Oncology clinic) and the Cancer Association of Namibia, collected all cancer cases reported to the Windhoek state pathology laboratory and the single existing private pathology laboratory from 1979 to 1994. From 1995 onwards, the Namibia National Cancer Registry commenced active registration of both pathology-based and clinical cases for four sentinel regions (Erongo, Oranjemund, Oshakati and Khomas). Cases that are diagnosed in South Africa are re-routed to the Namibian registry via a network of registries, which are technically supported by the International Agency for Research on Cancer (IARC). The Namibia National Cancer Registry aims to provide a database of information that will ultimately lead to improved cancer prevention and control among the Namibian population.

The Namibia National Cancer Registry is a Population-based registry.

 

Location of Registry

The registry is based in the premises of the Cancer Association of Namibia (90 John Meinert Street, Windhoek-West, WINDHOEK). There is a separate office, one computer linked to a server is used for data entry. Transport, Technical and Administration support are provided by the Association, as required.

Director: The Registry is co-managed by R. Hansen CEO of the Cancer Association of Namibia, Technical Leader, L. Horn (Cancer Association of Namibia) and Dr. A. Zietsman and the staff of the DR AB May Cancer Care Centre.

E-mail:  canreg@can.org.na

 

Registry population

The registry covers the entire population of Namibia 2,104,900 at the 2011 census. Map of Namibia shows the 11 regions and the population of each.

 

Source of finance

IARC covers some ground travel costs. All other registry activities are funded by the Cancer Association of Namibia.

 

Sources of information for the registry

There are two large state hospitals in Windhoek: Central Hospital (which includes the AB May Cancer Care Centre) and Katutura Hospital, and one in each Region. A new cancer centre has opened in Oshakati State Hospital.

There are five private hospitals in Windhoek (Roman Catholic, Rhino Park, Medi-Clinic, Paramount and Lady Pohamba).

During 2015 the Namibia Oncology Centre (NOC) – a specialized private cancer treatment facility – opened its doors; the first of its kind for Namibia.

At present, primary data collection takes place only at AB May Cancer Care Centre and Namibia Oncology Centre to which all cancer patients are supposed to be sent for assessment and possible treatment if private or state.

There are just 2 pathology laboratories in the country, the state National Institute of Pathology (NIP) and the private PathCare. Some information on cases from Namibia is received from the laboratory in Cape Town (Dr Holm). The pathology reports from NIP include demographic data, but place of residence is noted in less than one third. The print-out received from PathCare does not include personal details, only the age and sex of the subject. There is no service of clinical Haematology.

Death registry – There is civil registration of deaths, by cause, the responsibility of the Ministry of Home Affairs. Permission for access to copies of certificates of cancer cases has been requested. The quality of information as to cause of death is not known.

 

Methods of registration

Case finding relies upon receipt of completed registration forms, completed by nursing staff in the admissions unit of AB May Cancer Centre, NOC and copies of pathology reports, as described above. Currently, there is no active case finding.

 

Data management

A desktop computer is used for data entry. CanReg5 is employed.

 

Data analysis/results

There are 3 published reports (1995-1998, 2000-2005, and 2006-2009). The reports show wildly fluctuating numbers of cases registered, which reflects the numbers of cases on the CanReg database.

 

Publications

H Carrara, L Steln, F Sltas, J Ferlay and staff of Namibian Cancer Registry   Cancer in Namibia 2000-2005.

ASB van Dyk, RN, LF Small, A Zietsman, The Pain Experience and its management in cancer patients during hospitalization (in Namibia)  Health SA Gesondheid Vol.5 No.4 - 2000